Inês Alves

Degree in veterinary medicine, Oporto University; post-graduation in soft tissues surgery – Lusófona University, and currently a Ph.D. student in Human Kinetics - Évora University. Founder and president of ANDO Portugal, the Skeletal Dysplasia National Association; member of the Committee for Orphan Medicinal Products,EMA; Patient representative at the European Reference Network for Rare Bone diseases (ERN BOND); co-leader of Patient Outcomes at the European Registry for Rare bone conditions (EuRR-Bone); EUPATI Portugal vice-President; founder and chair of the European Rare Bone Forum (ERBF); co-leader of the Translational Outreach working group of GEMSTONE COST action.